Apr 29, 2025
Kent Bressler speaks with Rachel Claudine and Dr. Sandy Gilbert from the National Kidney Foundation. They explore the groundbreaking KidneyCARE Study, a pioneering patient-centered research initiative designed to gather vital data directly from individuals living with various stages of kidney disease. Rachel shares her personal journey with Lupus Nephritis, emphasizing the significance of patient stories in advancing kidney health research. Dr. Gilbert highlights the study's aim to capture real-world patient experiences, offering insights into disease progression and treatment efficacy. Discover how this innovative registry is set to transform kidney care and empower patients, while also discovering how you can contribute to this vital research.
For more information on the KidneyCARE Study and to participate, visit kidneycarestudy.org.
About Our Guests:
Sandy Gilbert, PhD is the Senior Director of
Patient Outcomes Research at the National
Kidney Foundation (NKF), where she manages the KidneyCARE
(Community Access to
Research Equity)™ Study. Since joining NKF in 2024, she has focused
on developing and
overseeing this pioneering national kidney disease patient registry
– the first to
integrate patient-reported data with clinical data from electronic
health records (EHRs).
Rachel Claudin, BS, CCLS is the
Patient-Centered Research Director at the National Kidney
Foundation (NKF). Her main work for the past three years has been
focused on the advancement of the KidneyCARE Study. As a person
living with Lupus Nephritis, she is excited for the patient-
entered data collected by the Study to increase and improve kidney
care research. Previous to
the NKF, Rachel worked in hospital and hospice settings advocating
for patients utilizing the
shared decision-making model of healthcare.
For more information on Kidney Solutions and to join our supportive community, visit kidneysolutions.org
Host: Kent Bressler
Producer: Jason Nunez
Remember to keep breathing, and don’t miss the next amazing episodes of Kent’s Kidney Stories!